The sister and brother-in-law of a Milton Keynes woman have walked over 10 hours in a bid to raise money for what could be a life-changing operation.
Amy Stewart, from Milton Keynes, was born with a condition called Cleidocranialdysostosis which affects just 1 in a million.
Cleidocranial dysostosis (CCD) is a rare genetic condition that affects teeth and bones, including the skull, face, spine, collarbones and legs. The bones in people with CCD are formed differently and are more fragile than normal and Amy was also born without any clavicles at all.
Back in August of last year, Amy had a fall and due to her condition making her spine weaker, the fall led to a spine fracture and her kyphoscoliosis (a deviation in the curvature of the spine) deteriorating rapidly, reducing her quality of life.
After being put back in touch with NHS specialists she had seen as a child, they advised that they cannot operate, leaving Amy with the only option of going private, where the surgeon has agreed to do the surgery.
She has been told that she can get in for surgery very soon, however, the cost for this surgery is £38,000 and her recovery is due to take up to 12 months.
Amy is due to be getting married in June 2023 and says she has "dreamt of my wedding day since I was a little girl, and to now know I still have hope of walking down the aisle pain free, feels like a dream come true."
Last Saturday (29/1), Amy's sister and brother-in-law, took part in a 35 mile sponsored walk in a bid to raise money.
Claire Holden and David Holden took off from their home in Bletchley and walked all the way to the royal national orthopaedic hospital in Stanmore, where Amy is due to have her surgery.
After a walk that lasted over 10 hours, the couple managed to raise over £2,000 in sponsorships. Amy described the couple to MKFM as 'two of the most selfless people' she knows.
On 26th February, 'Amy’s Raffle To Recovery!' will be taking place live on Facebook, to help raise some more money for Amy's surgery, for just £2 people can buy a ticket with a chance to win some amazing donated prizes from local people and businesses. You can find out more about the raffle here.
You can read more about Amy's story and donate to her fundraiser here.
