PKD Funday

The First PKD Family Fun Day came to Campbell Park on Sunday 16 September, 2012

It was a fun day out and a great way to help find a cure and better treatments for Polycycstic Kidney Disease

You could walk, run or jog 1 Mile, 5km or 10km, around one of our most beautiful parks.

Plus enjoy a fab day out with your family.

MKFM and Real Music MK hosted the main stage with live music and dancing all afternoon. The MKFM Megaslide was on the events plateau plus stalls, crazy golf, roundabouts, trampolines, refreshments and much, much more.

Our Black Panthers street team was there all day along with our mascot Samantha The Panther. Did we snap you?  Check out the photo gallery to find out:

Every participant received an exclusive PKD Medal and goody bag on completing the event.

9am Walkers and Runners Registration Desk Open
10.15 10k Runners Warm Up with Lianne Brown
10.30 10k Start
10.45 5k Runners Warm Up
11 5k Start
11.15 1 mile Strollers/Walkers Warm Up
11.30 1 mile Start
Midday Live music, bands and entertainment from Real Music Events MK hosted by MKFM's Chris Gregg until 4pm, followed by PKD Raffle

About The Charity

The PKD Charity is a registered charity, No 1085662, which was set up in 2001 by professionals, patients and members of families affected by PKD.

We believe that by focusing our efforts towards common goals we can all help to make a difference: together we can help to both improve the current situation and to provide more hope for the future for those whose lives are affected by PKD. 

Are you interested in becoming involved? We are currently seeking volunteers to start local support groups.  Contact Maggie Pope. 

Charitable Objectives

• To relieve people affected by polycystic kidney disease, in particular by providing information, advice and support to patients and families affected by polycystic kidney disorder.
• To fund research into determining the causes of polycystic kidney disease and into discovering treatments and a cure for PKD. Research results to be available to the medical community and the public and to be reported on our web site and in our newsletter.
• To raise awareness of PKD, providing information to the public, the medical community and the media.

ABOUT PKD

PKD is an abbreviation for POLYCYSTIC KIDNEY DISEASE, an inherited range of diseases which are a common cause of kidney failure.

Autosomal Dominant Polycystic Kidney Disease (ADPKD) is the world’s most common inherited kidney disease. 

ADPKD affects between 1 in 800 and 1 in 1000 people, irrespective of gender, race or ethnic group. 

If a parent has ADPKD, there is a 50% chance that each child born will inherit the disease.

The disease is characterised by numerous fluid-filled cysts in the kidneys and often the liver and pancreas.

The photo shows a PKD kidney compared with a normal kidney. 

Over time, the cysts grow and multiply, replacing normal healthy tissue and causing the kidneys to lose their function. Kidneys can enlarge to 3 to 4 times their normal size.

(Photo courtesy of the PKD Foundation)

ADPKD is a progressive chronic kidney disease and incurable. There is currently no treatment that will stop the cysts developing and growing. However, a number of drugs are currently being trialled around the world that offer hope for stopping the decline of kidney function.

Symptoms vary from none to a variety of problems including pain, bleeding, infection in the urine, kidney stones and kidney failure.

Nearly two thirds of people with ADPKD will develop high blood pressure. Treating blood pressure with drugs can slow the rate at which the kidneys deteriorate. Without treatment for high blood pressure the chances of a stroke or heart problems increase.  Click here for more about blood pressure.

Brain aneurysms may also affect around 8% of people with ADPKD. Patients should be screened, if there is a history of strokes in the family. 

However, not everyone with ADPKD will develop kidney failure and some people may never have any problems or be unaware they have the condition.

PKD is present in two forms:

ADPKD - AUTOSOMAL DOMINANT POLYCYSTIC KIDNEY DISEASE, the world’s most common inherited life-threatening condition, in which fluid-filled cysts develop in both kidneys. Between 1 in 800 and 1 in 1000 people worldwide suffer from ADPKD. Over half of those affected will have kidney failure by the time they are 60 years old. If someone has ADPKD, there is a 50% likelihood that the disease will pass to each child. 

Read more about ADPKD.


ARPKD - AUTOSOMAL RECESSIVE POLYCYSTIC KIDNEY DISEASE occurs in children and results in enlarged kidneys with or without cysts, liver enlargement and often high blood pressure.  In ARPKD, sadly, 30% to 50% of ARPKD infants die at birth or shortly thereafter, primarily as the result of underdeveloped lungs. 

Read more about ARPKD.